Genopower: On Genomics, Disability, and Impairment

Alexander, Michelle, The New Jim Crow: Mass Incarceration in The Age of Colorblindness. New York and Tennessee: New Press, 2012.

Anderson, J. A., M. S. Meyn, C. Shuman, R. Zlotnik Shaul, L. E. Mantella, M. J. Szego, S. Bowdin, N. Monfared, and R. Z. Hayeems, “Parents Perspectives on Whole Genome Sequencing for Their Children: Qualified Enthusiasm?” Journal of Medical Ethics 43:8 (2016), 535–539. https://doi.org/10/gbxvdr

Barnes, Elizabeth, “Against Impairment: Replies to Aas, Howard, and Francis,” Philosophical Studies 175:5 (2018). https://doi.org/10/gf9gdj

Barnes, Elizabeth, The Minority Body. New York: Oxford University Press, 2016.

Ben-Moshe, Liat, Decarcerating Disability: Deinstitutionalization and Prison Abolition. Minneapolis: University of Minnesota Press, 2020.

Biebricher, Thomas, “(Ir-)Responsibilization, Genetics and Neuroscience,” European Journal of Social Theory 14:4 (2011), 469–88. https://doi.org/10/bpwxsh

Bliss, Catherine, “Conceptualizing Race in the Genomic Age,” Hastings Center Report 50:S1 (2020). https://doi.org/10.1002/hast.1151

Bliss, Catherine, Social by Nature: The Promise and Peril of Sociogenomics. Palo Alto: Stanford University Press, 2018.

Calvo, Franz, Bryant T Karras, Richard Phillips, Ann Marie Kimball, and Fred Wolf, “Diagnoses, Syndromes, and Diseases: A Knowledge Representation Problem,” AMIA Annual Symposium Proceedings 2003:802 (2003), 802.

Campbell, Fiona Kumari, “Legislating Disability: Negative Ontologies and the Government of Legal Identities.” In Foucault and the Government of Disability, ed. Shelley Tremain. Ann Arbor: University of Michigan Press, 2005.

Campbell, Fiona Kumari, Contours of Ableism: The Production of Disability and Abledness. New York: Palgrave Macmillan, 2009.

Carlson, Licia, The Faces of Intellectual Disability: Philosophical Reflections. Bloomington: Indiana University Press, 2010.

Coors, Marilyn E., “A Foucauldian Foray into the New Genetics.” Journal of Medical Humanities 24:3 (2003), 279–89. https://doi.org/10/fdrbz9.

Erevelles, Nirmala, Disability and Difference in Global Contexts: Enabling A Transformative Body Politic. New York: Palgrave Macmillan, 2011.

Foucault, Michel, Security, Territory, Population: Lectures at the Collège De France, 1977-1978. New York: Picador/Palgrave Macmillan, 2009.

Foucault, Michel, The Birth of Biopolitics: Lectures at The Collège De France: 1978-79. New York: Palgrave Macmillan, 2008.

Foucault, Michel, The Hermeneutics of The Subject: Lectures at The Collège De France, 1981-82. New York: Picador, 2005.

Foucault, Michel, The History of Sexuality: Volume 1: An Introduction. New York: Vintage Books, 1990.

Garland-Thomson, Rosemarie, “Eugenics,” In Keywords for Disability Studies, ed. Rachel Adams, David Serlin and Benjamin Reiss, 215–26. New York: NYU Press, 2015.

Goldenberg, D. L., L. A. Bradley, Lesley M. Arnold and, J. M. Glass, “Understanding Fibromyalgia and Its Related Disorders.” Primary Care Companion to the Journal of Clinical Psychiatry 10:2 (2008), 133–44.

Kay, Lily. “Who Wrote the Book of Life? Information and the Transformation of Molecular Biology, 1945-55,” Science in Context 8:4 (1995), 609– 34.

Kearney, Jennifer A., “Advances in Epilepsy Genetics and Genomics.” Epilepsy Currents 12:4 (2012): 143–46. https://doi.org/10/ghj5s2.

Kittay, Eva Feder, Learning from My Daughter: Valuing Disabled Minds and Caring That Matters. New York: Oxford University Press, 2019.

Kittay, Eva Feder, “We Have Seen the Mutants—and They Are Us: Gifts and Burdens of a Genetic Diagnosis.” Hastings Center Report 50:S1 (2020). https://doi.org/10.1002/hast.1155

Kolopenuk, Jessica, “Provoking Bad Biocitizenship,” Hastings Center Report 50:S1 (2020). https://doi.org/10.1002/hast.1152

Lajoie, Corinne, and Emily Douglas, “A Crip Queer Dialogue on Sickness (Editors’ Introduction),” Journal of Critical Phenomenology 3:2 (2020), 1–14.

Lee, Sandra Soo-Jin, “Excavating the Personal Genome: The Good Biocitizen in the Age of Precision Health,” Hastings Center Report 50:S1 (2020). https://doi.org/10.1002/hast.1156

McWhorter, Ladelle, “Governmentality, Biopower, and the Debate over Genetic Enhancement,” Journal of Medicine and Philosophy 34:4 (2009), 409–37. https://doi.org/10/fttd36.

Nelson, Alondra, The Social Life Of DNA: Race, Reparations, And Reconciliation After The Genome. Boston: Beacon Press, 2016.

Parens, Erik, “Social Genomics Can Combat Inequality or Be Used to Justify It” Aeon.co. https://aeon.co/essays/social-genomics-can-combat-inequality-or-be-used-to-justify-it. (accessed November 16, 2020).

Plomin, Robert, Blueprint. Cambridge: MIT Press, 2018.

Plomin, Robert, and Sophie Von Stumm, “The New Genetics of Intelligence.” Nature Reviews Genetics 19: 3 (2018). https://doi.org/10/gctn8m

Puar, Jasbir K, The Right to Maim: Debility, Capacity, Disability. Durham: Duke University Press, 2017.

Rajan, Kaushik Sunder, Biocapital: The Constitution Of Postgenomic Life. Durham: Duke University Press, 2006.

Reardon, Jenny, The Postgenomic Condition: Ethics, Justice, and Knowledge After the Genome. Chicago and London: University of Chicago Press, 2018.

Reynolds, Joel Michael, “Health and Other Reveries: Homo Curare, Homo Faber, and the Realization of Care.” In Normality, Abnormality, and Pathology in Merleau-Ponty, ed. Talia Welch and Susan Bredlau, 203–24. New York: State University of New York Press, 2022.

Reynolds, Joel Michael, “Health for Whom? Bioethics and the Challenge of Justice for Genomic Medicine,” Hastings Center Report 50:S1 (2020), 2–5. https://doi.org/10.1002/hast.1149

Reynolds, Joel Michael, The Life Worth Living: Disability, Pain, and Morality. Minneapolis: University of Minnesota Press, 2022.

Reynolds, Joel Michael, “‘What If There’s Something Wrong with Her?’‐ How Biomedical Technologies Contribute to Epistemic Injustice in Healthcare.” The Southern Journal of Philosophy 58:1 (2020), 161–85. https://doi.org/10/gh52z7

Roberts, Ed, “On Disability Rights: Highlights from Speeches by Ed Roberts.” World Institute on Disability. https://www.commonlit.org/texts/on-disability-rights-highlights-from-speeches-by-ed-roberts (accessed September 28, 2021)

Rose, Nicholas, and Carlos Nova, “Biological Citizenship,” In Global Assemblages: Technology, Politics, and Ethics as Anthropological Problems, ed. Aihwa Ong and Stephen J. Collier. London: Wiley, 2008.

Shildrick, Margrit, Dangerous Discourses of Disability, Subjectivity and Sexuality. New York: Palgrave Macmillan, 2009.

Stern, Alexandra, Telling Genes: The Story Of Genetic Counseling In America. Baltimore: Johns Hopkins University Press, 2012.

Tallbear, Kim, “Elizabeth Warren’s Claim to Cherokee Ancestry Is a Form of Violence.” High Country News.

https://www.hcn.org/issues/51.2/tribal-affairs-elizabeth-warrens-claim-to-cherokee-ancestry-is-a-form-of-violence. (accessed September 28, 2021)

TallBear, Kimberly, Native American DNA: Tribal Belonging and The False Promise of Genetic Science. Minneapolis: University of Minnesota Press, 2013.

Tremain, Shelley, Foucault and Feminist Philosophy of Disability. Ann Arbor: University of Michigan Press, 2017.

Tremain, Shelley, Foucault and the Government of Disability. Ann Arbor: University of Michigan Press, 2015.

Tremain, Shelley, “Reproductive Freedom, Self-Regulation, and the Government of Impairment in Utero.” Hypatia 21:1 (2006), 35. https://doi.org/10/cp2jgj

Tremain, Shelly, “On the Subject of Impairment.” In Disability/Postmodernity: Embodying Disability Theory, ed. Tom Shakespeare and Mairian Corker. London: Continuum, 2002.

Waldschmidt, Anne, “Who Is Normal? Who Is Deviant? ‘Normality’ and ‘Risk’ in Genetic Diagnostics and Counseling.” In Foucault and the Government of Disability, ed. Shelley Tremain, 191–207. Ann Arbor: University of Michigan, 2005.

Weigmann, Katrin, “The Code, The Text And The Language Of God.” EMBO Reports 5:2 (2004), 116–18. https://doi.org/10/bcpwz4

Wendell, Susan, The Rejected Body: Feminist Philosophical Reflections On Disability. New York: Routledge, 1996.

Wendell, Susan, “Unhealthy Disabled: Treating Chronic Illnesses as Disabilities.” Hypatia 16:4 (2001), 17–33. https://doi.org/10/fst6qh.

Werner‐Lin, Allison, Sarah Walser, Frances K. Barg, and Barbara A. Bernhardt, “‘They Can’t Find Anything Wrong With Him, Yet’: Mothers’ Experiences Of Parenting An Infant With A Prenatally Diagnosed Copy Number Variant (CNV),” American Journal of Medical Genetics 173:2 (2016), 444–51. https://doi.org/10/f9ptcp

Wilson, Robert A., The Eugenic Mind Project. Cambridge, MA, USA: MIT Press, 2017.

Zahid, Jasmine, “A Defense of ‘The Case for Conserving Disability’,” AMA Journal of Ethics 18:4 (2016), 399–405. https://doi.org/10/gh52q7

Zhang, Sarah, “The Last Children of Down Syndrome,” theatlantic.com.

https://www.theatlantic.com/magazine/archive/2020/12/the-last-children-of-down-syndrome/616928/?fbclid=IwAR0aUjidoHySTvzBi9sTvw1zAssLrDNOfrqWYeGOxU5MhrGCfxc1fRaOFE0 (accessed September 21, 2021)