Social late effects in pediatric cancer survivors

  • Line Thoft Carlsen
Keywords: Childhood cancer, late effects, exclusion, grounded theory, qualitative

Abstract

Life changes without warning when a child is diagnosed with cancer: both at the time of diagnosis and during the initial treatment. The safe, well-known everyday life is being disturbed, and the patients lose their opportunity to have a normal youth, either periodically or permanently. Childhood cancer survivors narrate that their cancer survival is characterized by positive words to rhetorical symbolize that the  individual has beaten cancer: a success or a victory. Surviving cancer are rarely without physical, mental and social late effects. The survival has an underexposed downside: the risk of a life with severe late effects that is significant for the survivors and have great consequences for their ability to be a part of and contribute to society. This article present sub results from the empirical qualitative Ph.D.-project Social Consequences of Childhood Cancer including qualitative interviews and observational studies. The study exposes some of the social consequences of childhood cancer that occur post-cancer based on the perspective of 23 survivors (aged 18-39). In addition, Erwing Goffman's and Aaron Antonovskys theories of stigma and performance, as well as other relevant research literature, are used to discuss and substantiate the consequences caused by late effects described by child cancer survivors. 

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Published
2020-09-08
Section
Artikler