Social late effects in pediatric cancer survivors


  • Line Thoft Carlsen



Childhood cancer, late effects, exclusion, grounded theory, qualitative


Life changes without warning when a child is diagnosed with cancer: both at 
the time of diagnosis and during the initial treatment. The safe, well-known 
everyday life is being disturbed, and the patients lose their opportunity to 
have a normal youth, either periodically or permanently. Childhood cancer 
survivors narrate that their cancer survival is characterized by positive words to rhetorical symbolize that the  individual has beaten cancer: a success or a 
victory. Surviving cancer are rarely without physical, mental and social late 
effects. The survival has an underexposed downside: the risk of a life with severe 
late effects that is significant for the survivors and have great consequences 
for their ability to be a part of and contribute to society. 
This article present sub results from the empirical qualitative Ph.D.-project 
Social Consequences of Childhood Cancer including qualitative interviews and 
observational studies. The study exposes some of the social consequences of 
childhood cancer that occur post-cancer based on the perspective of 23 survivors 
(aged 18-39). In addition, Erwing Goffman's and Aaron Antonovskys 
theories of stigma and performance, as well as other relevant research literature, 
are used to discuss and substantiate the consequences caused by late 
effects described by child cancer survivors. 


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